Von Willebrand syndrome: Young patient with five years of menstruation

Bleeding can not be stopped due to a congenital syndrome
A young Australian has a real nightmare: 27-year-old Chloe Christos had her days uninterrupted for five years. The reason for the continuous bleeding is the so-called "von Willebrand syndrome", a hereditary disorder, through which bleeding can not be stopped properly. In addition, the woman blew unusually strongly, because during a normal period about 20 to 60 ml of blood are lost, Chloe was already more than half a liter within a few days.

Of-Willebrand's Syndrome affects women and men
The story of Chloe Christos from Australian Perth sounds like the naked horror for most women. For the young woman had her rule for five years. But not only that, because the 27-year-old now also lost significantly more blood than is the case with a normal menstrual period. The unusual phenomenon was caused by the Von Willebrand syndrome, a congenital bleeding disorder. In conversation with the daily newspaper "Daily Mail Australia", Chloe talks about her time of suffering and gives courage to others.

A congenital bleeding disorder caused a young woman for a permanent period.(Image: Focus Pocus LTD / fotolia.com) A congenital bleeding disorder caused a young woman for a permanent period.(Picture: Focus Pocus LTD / fotolia.com)

Half a liter of blood in four days
When the young woman at the age of 14 first entered the rule, she quickly realized that something was wrong. For the bleeding simply ceased."I could not do anything. I often fainted, had a dangerously low blood pressure and could never drive or go out, "said Christos in the interview. The lack of end of the period was not everything, because in addition the bleeding was also still extremely strong. While women on average lost between 20 and 60 milliliters of blood in the course of their regularity, Chloe already reached more than 500 ml within four days.

Frequent nasal bleeding and hematoma
Menstruation was triggered by "von Willebrand syndrome",According to the German Haemophilia Society for Combating Blood Diseases( DHG), this is the most frequent congenital bleeding disorder affecting both men and women with a frequency of about 1%.The disease is caused by a deficiency or a function disorder of the von Willebrand factor( vWF), a protein that plays a central role in the blood clotting process. In the case of an injury, this ensures that blood platelets( platelets) adhere to the affected site and thus cause closure of the wound and blood coagulation.

If this protein is absent, the bleeding can not be stopped completely. People with the syndrome have an increased tendency to bleed, with nasal bleeds, superficial bruises and a prolonged and intensified period in women.

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Medication with severe side effects
The young Australian woman went to trouble with the disease, but the strain was immense: she had a synthetic medicine for seven years, which was supposed to make her everyday life easier - but even after all these years she had terrible side effects. Finally, Christo sought help at a "Haemophilia Center" in Adelaide, where he was given a remedy that is normally prescribed to men with haemophilia( "hemophilia").

The treatment she used at the beginning of each cycle worked and less than a month ago she had her first regular period, which lasted only four to five days."It is the difference between two weeks a month lying in the hospital and taking two paracetamol and a heat pack for just one day," she told the Daily Mail. Now, her goal was to raise awareness of the disease more closely and to ensure that affected women worldwide had access to effective treatment options.

Doctors often restrained in men's medication
It is often not known that medication.which have previously been prescribed only to men, are also suitable for women with similar bleeding disorders, the 27-year-old continued. Therefore, the doctors are reluctant to have the funds tested by women as well."First, to make the right diagnosis is one thing. Helping people to find an adequate treatment plan is another matter, "says Christos.(nr)

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